There is no footprint too small to leave an imprint on this world.

Tuesday, July 15, 2014

Jane's Official Diagnosis

Bittersweet. 

That's how it feels when you finally get the cause of death for your daughter. It has been 8 months since she passed but we just received her cause of death yesterday. 

The result? Systematic Inflammatory Response of an unknown origin.

I will let Bryan explain that to you in doctor terms: 
systemic inflammatory response of unknown origin: an inflammatory response of the whole body usually related to infection but not always so. The criteria for SIRS is two of the following four: tachycardia (fast heart rate>90), tachypnea (fast breathing>20), fever, or high white blood cell count.

So basically, they have no idea why Jane died. It could have been an infection, but not necessarily. It has been a very weird evening for me since we found out. Like I'm stuck in limbo. Not having real closure. I feel like I should be upset, but I can't be because I don't know what to be upset at. I'm upset at nothing. Nothing being the lack of diagnosis. 

I am not okay tonight. I just want to curl into a ball and not come out for a week. I can't believe this is really real. It can't be. I am not this person who can survive tragedy. 

I do take comfort in my initial reaction to hearing the news. That this "nothing" that Jane apparently had was God's way of getting her home. If it was meningitis or cancer or "nothing" the end result would have been her mortal death and return to her Savior. At least the way He took her was so quick and painless; it was very merciful. 

Tuesday, July 1, 2014

Surviving Intern Year

For our (almost) 9 years of married life, years have been measured by school. They begin and end in May/June. Even though Bryan isn't a student anymore, his years of training are still measured this way. Today he finishes his first year of residency, or Intern year. Today, I feel more like this is our New Year then January 1st.
Intern year is tough, to put it lightly. It is equally demanding physically, emotionally, spiritually and mentally.
One year ago:
We moved away from Vermont, the state that will probably always have my heart. It was hard. We started our lives in a new area, which is always intimidating. Making friends, finding a new routine and figuring out where we fit in again. Bryan started a new job, where he felt responsible for people's health and lives. He was humbled, scared and had a constant feeling of inadequacy. His hours were long. We didn't see much of him and when we did he was exhausted.
All of this is typical to a medical Intern Year. It caused a lot of stress in our family and depression in my life. It was a dark and difficult time from June to November.
During our church's women's session of General Conference, the Prophet, Thomas S. Monson gave a talk which hit close to home about a wife surviving residency. I sobbed as I listened to it and felt like it was just for me. One of my favorite quotes now has come from this inspired talk,
"My dear sisters, your Heavenly Father loves you--each of you. That love never changes. It is not influenced by your appearance, by your possessions, or by the amount of money you have in your bank account. It is not changed by your talents and abilities. It is simply there. It is there for you when you are sad or happy, discouraged or hopeful. God’s love is there for you whether or not you feel you deserve love. It is simply always there."
June through November of 2013 was the hardest 5 months I had been through to date and I knew I still had 7 more months of Intern Year to go.
November came around and his schedule was lighter and we saw some happiness returning. Only to have our life thrown into the eye of a tornado just 2 weeks later when our baby daughter died.
No, THIS is the hardest thing I have ever been through.
So for the next 7 months we balanced the demands of intern year with the grief of losing our princess. But to be honest, intern year felt a lot easier now that we truly knew hard.
Today feels like we reached the peak of a mountain. We did it, we survived intern year. It isn't our Everest, that will come in 3 years when he finishes residency. But this is a significant triumph.  When we started medical school a good friend of ours was finishing. And she said "you will be amazed at the person you will become and the things you can do when medical school is over." She was absolutely right. And that still applies now. I am amazed with what we have had to survive and endure. It wasn't always pretty, but we did it.
I am grateful for our "Sherpas" who guided and helped us along. We have been blessed with the most incredible ward family who has taken our load many times. We have felt encircled in the most loving, protective, supporting and patient embrace by everyone around us. Including many strangers who have sent us messages and letters. We truly are blessed.
Life is hard, but it is not meant to be endured alone.
"We were not placed on this earth to walk alone. What an amazing source of power, of strength, and of comfort is available to each of us. He who knows us better than we know ourselves, He who sees the larger picture and who knows the end from the beginning, has assured us that He will be there for us to provide help if we but ask. We have the promise: “Pray always, and be believing, and all things shall work together for your good. (Doctrine and Covenants 90:24)”
"I am done!!!" happy dance

Tuesday, June 17, 2014

Always on my mind.

It's been a while since I wrote on the blog. It's not that I haven't wanted to, I just haven't felt impressed by anything in particular to write about. It has been a really hard month in my grieving. I feel like I am back at square one. Confused, anxious, overwhelmed, sad and full of "why's."

I was reading in a book yesterday that a good friend of mine sent me, "This Is How We Grow." The author is a clinical psychologist and has been through her share of grief. She says,
 "I have been filled with an abundance of "why's" in my days. Some can be answered and provide deeper understanding, but many will never be answered in this life. Sometimes, in choosing to question "why," we choose to remain stagnant in our learning. We choose to stay in the dark- alone, frustrated and angry. The question I find more helpful is "How?" "How do I carry on?" "How do I do what I'm being asked to do?" "How do I learn from this?" "How" is a question of commitment, a question of action, a question of faith. Though we may not understand "why," the answer to "how" is always there."

So I got out my journal and wrote all my "why's." She is right. All but one of my questions will not be answered in this life. Then I wrote my "how's". All but one of those questions I could answer. And the answer to all of them required more spirituality, more holiness, more faith and more patience.

Why does Heavenly Father command us to read scipture, pray and think of Him everyday? It is for our own peace. So our spirit can be mighty enough to challenge the "why's" and keep moving forward.

There is not a minute that goes by that I don't have Jane on my mind. I am constantly thinking about her. Constantly. When I get to say her name and talk about her it is like a little release of all that is stirring in my brain. I love my perfect princess and all that she has taught me.

I'm going to make it a goal whenever I have a "why?" to turn it into a "how?" I am hoping this will be the change I need to have a better month.



Sunday, May 11, 2014

To the mothers who have lost a baby.


I have had many privileges to meet women who have lost a baby and connect with them. It is genuinely my privilege and honor to be trusted with someone's deepest parts of their soul and anguish. I wish I could give them all a hug so tight that it would keep them from falling apart. I have been thinking about these women and the thousands of other women I don't know that may need to connect to another "Angel Mom". I wrote this with them in mind. All the things I wish I could say if I could meet them.

You will survive.
I know you feel like you can't breathe. I know your arms physically ache for your baby. I know you feel like there is no possible way you can keep moving forward. I know you feel empty, lost and scared. Like you have anxiety and depression running through your veins.
But I promise, you will make it.
Your breath will come because you're still alive, even though sometimes you wish you weren't. Your arms will be filled again with the love of others; other children, friends, family, neighbors, even strangers at chick-fil-a. You will keep moving forward one second at a time, then one minute at a time, then one hour at a time until one day has passed. It will be like that for a while. But the clock will eventually speed up and the days won't seem to last forever.
You will make it because you don't have another choice.


Your child is happy and safe
I have always believed in Jesus Christ and had a strong religious upbringing. But there comes a time, even for us who are raised going to church, that we figure it out for ourself.
Immediately following Jane's death, even while we were still in the hospital, I felt confused and unsure. I had heard the answer a thousand times in my life; she is in heaven (aka the spirit world). But I just wasn't sure. My faith had been completely shaken.
I called one of my best friends Heather and her husband Jacob while in the hospital. A couple who had a stillborn baby boy, Levi,  16 months before Jane died. What I remember most is how much crying we did together, 3,000 miles apart. I needed to know how my faith could survive such tragedy. She said the most perfect thing to me. Her faith didn't, but she has re-built it piece by piece and the pieces she has are more treasured then before. So that is where I started. And I found that it came back together quicker and stronger then before.
I know personally how easy it is to question God and His plan for us on earth. What is his purpose in taking beautiful children away from parents? I had a very simple decision to make.

Choice A:
Do I choose to believe Jane is in a happy place, surrounded by love and beauty? That she has occasion to be with our family in spirit and bring us her love. That God had a specific plan for her and she was needed back in the spirit world.

Or Choice B:
I can choose to believe she is gone. She has left us and either a cruel, misguided God has taken her or there is no God, therefore no life after this and she is gone forever.

Which one sounds more pleasant? Ya...I choose A. And it isn't naive to believe it. One makes me happy and brings me peace. The other causes insurmountable anxiety and fear. Why wouldn't I choose A? It is absolutely the logical choice.


You will become a different person.
In my first post on the blog I mentioned how I didn't know who I was anymore. I didn't recognize myself. I couldn't feel happy. I couldn't smile, laugh or show any emotion besides grief. It scared me to not recognize myself. Losing a child changes you. But it's mostly for the better.
My anxiety and depression have gotten worse. But my patience is broader. My sympathy for strangers has increased. My desire to do good and be good has grown. I don't care as much what others think about me, as long as I am doing what is best for myself, my family and what makes me feel complete. I desire more compassion, more sympathy, more love, more patience and all other good things. I like the new me better then the old.

You will be happy again
Everything has an opposite. Cold/hot. Happy/sad. Joy/grief. Our grief has gone as deep as any human can probably endure. With that, comes joy that is beyond comprehension. The huge joyful moments are still few and far between, but when they come they are a whole new level of understanding and peace.
Sometimes you have to choose to see those moments; but they are there.

Your grief will always be a part of you
(this one is added from my sweet friend Heather Dahle who I mentioned above)
"Loss isn't something you get over.  It is something you work through.  Grief is the process of working and adjusting to your new "normal."  It isn't always a linear progression.  It can be messy, and sometimes it doesn't make sense.  There are relapses, backtracking and detours.  I might never be done grieving the loss of Levi (Heather's son), and I'm okay with that.  I recognize that many of my most sacred and cherished experiences are a result of working through my grief."
I want to add to what Heather said my own confirmation of this truth. I know I have only been through this process a short 6 months but I have experienced those "backtracks, relapses and detours". The hard days truly are so difficult, but they are so important. They bring me to my knees, they draw me closer to Jane and to my Heavenly Father. They are part of becoming that new and better person.

Talk about it
I think one of the worst things you could do right now is to keep your thoughts and emotions bottled up. Talk to friends. Don't stay silent. The more opportunities you get to share your babies name or stories about them the better you will feel. If you aren't ready to open up to other people, get a journal and open up there.

You are not alone
There are so many moms who have lost babies. When you become a member of this special club, you feel the need to help the other members. Especially the newest ones. Reach out to us and let us comfort you and help you. Send me an email or Facebook message. I would love to hear about your sweet angel and how you're feeling. We can help each other!
Not only are there other "angel moms", but there are neighbors, friends and family who want to help. Open up to them and let them in.
Though all of us can sympathize with you, your journey is unique to you. But even then, when you feel nobody truly understands your pain, you are not alone. Your Savior knows your pain exactly. He has already carried your sorrow. You are not alone! There is absolutely no way you can do this yourself, turn to Jesus Christ for relief.

Even though I haven't met every woman who has lost a baby, I love them all. Truly, truly love them. They are my sisters and comrades. And this was written based on the specific circumstance that I know, but I would imagine many of it applies to anybody who has survived someone close to them.

Saturday, April 19, 2014

He Is Risen! Easter thoughts and activities

"There would be no Christmas if there had not been Easter. The babe Jesus of Bethlehem would be but another baby without the redeeming Christ of Gethsemane and Calvary, and the triumphant fact of the Resurrection." -Gordon B. Hinckley


Easter 2013
This week has been emotional. I have tried to completely block out the thoughts of little girl’s Easter dresses. So, mostly my emotions have been of gratitude for my Savior. A kind of gratitude I have never felt. More than just a sincere thank you. Like soul-rejoicing praise and honor.
My testimony of the Savior and his purpose on earth have grown immeasurably. Because of the events of this week 2,000 years ago; I will have my daughter again. Because of His ultimate sacrifice He can empathize with me. Because of His pain I will never be alone. Because of His death and resurrection, Jane will live again.
I will have my daughter again!!! I can't say that enough or have too many exclamation points!
I have wanted Ethan and Nate to understand how relevant Easter is to our family now. I wanted this week to be more about Christ and less about chocolate bunnies and plastic eggs. I want them to know why we will see Jane again.
Here are a list of some things we did, if you want to try some in your home too. I would love to know if you do. I would love Jane to be used as a visual for your testimony or your children's testimony about this topic. I would love Jane Love to grow in your home! In fact, I am going so far as to start using a hash tag: #elizajanelove
Share your pictures of anything and everything you do, see or think about with Jane Love. It brings me comfort knowing she is still alive in your hearts and thoughts.
I asked a friend of mine what some of her Catholic traditions are this Holy Week and we have implemented some of them in our home.
-We read scriptures together every night, and these were the scriptures we read this week:
Palm Sunday: Mark 11:1-11.
Monday: Mark 11:15-18.
Tuesday: Mark 14:3-9.
Wednesday: Matthew 26:14-16.
Thursday: John 13:1-5.
Friday: Mark 15:21-39.
Saturday: Mark 15:42-47.
Sunday: Luke 24:1-9.
- She shared this link with me with great kid-friendly Easter activities and lessons:
- We were going to do a Passover dinner but that day ended up being a pretty bad one for me. I plan on doing it next year.
- The darling Activity Day girls in our ward Easter egg’d our house and put out 24 plastic eggs for us to find, they left 1 egg empty to represent Jesus’ empty tomb. I
Favorite Mormon Messages:
Because of Him (new this year, SO SO GOOD!): https://www.youtube.com/watch?v=_S3TI4bYerU

Mormon Channel Bible Videos:
He is Risen (A 7 minute video, that is a synopsis of all the below videos): https://www.youtube.com/watch?v=bAuaSpJ7zGs
Chronological videos of the Holy Week:
Jesus Warns Peter and Offers the Intecessory Prayer: https://www.youtube.com/watch?v=yL5jobrN3ck&list=PL4A73DDEE675FBC39&index=61
Jesus is tried by Caiaphas, Peter Denies Knowing Christ: https://www.youtube.com/watch?v=zMaHYMs6NB4&list=PL4A73DDEE675FBC39&index=59



Tuesday, April 8, 2014

God Be With You Til We Meet Again

One of my biggest fears doing this blog (I am embarrassed to admit this because it seems selfish) is that everyone will assume that I must be doing okay because I occasionally post about the joy I feel by being Jane's mom and the perspective I see in some good moments. I am terrified of losing the shoulders to cry on when I need them. I am scared that the texts, private Facebook messages, phone calls, emails and letters will stop. I need them so much. They keep me from burrowing into myself. I am an extrovert, my cup is filled by people being around me and supporting me. I need the security of friends holding me tight, whether literally or figuratively. Even if you live 3,000 miles away (which a big chunk of my friends do) I feel wrapped in love and support from every loving outreach.
Today while listening to pandora the song God Be With You Til We Meet Again came on. It was a beautiful rendition by Paul Cardell that can be seen here. Of course this song brought me to tears since it is commonly used as a funeral song. I sat on the couch, got out my hymnbook and sang along in my head. I knew Jane was close to my heart.
This song took on a new perspective to me in that moment. It wasn't an assurance of where Jane is and who she is with, I already know the answer to that. It was a reminder from sweet Jane that God will be with ME until her and I meet again.
 
Until then, "With his sheep securely fold you."
I have been familiar with this song and the parable of Jesus being our Shepard and we are his sheep for decades. Yet, today it clicked. I love those ah-ha! moments. They are the perfect mix of "I can't believe I never put that together, duh!" and "I just put that together all by myself!"
The words 'thank you' feel so inadequate in expressing my gratitude to His 'sheep' that have reached out to support my family. The love we have been given is astounding. I have felt "securely folded" in the most loving embrace from everyone.
 I love that; securely folded. I imagine the warmest, tightest, safest, most loving and sympathetic hug.
Today, Jane reminded me how lucky I am to have all of you. And I can imagine how grateful she is that we are being taken care of in her absence.
Can you imagine how much brighter this world would be if we took advantage more often the moments to "securely fold" those around us? I promise you that there are dozens of people who would be lifted by a phone call, letter, text or Facebook message. There are people, like me, who need to feel supported.
Find them. Reach out to them. Love them.
And when you do, think of Jane and the Jane Love you are spreading.

Tuesday, April 1, 2014

The ups and downs of grief


It's crazy how fast grief can take over my emotions.

This last weekend I have had a lot of anxiety. It was leading up to the general women's conference for our church that was broadcast on Saturday. All females ages 8 and older were invited. I think I knew what to expect; lots of little girls, talks about daughters and girls singing sweet songs about Christ. It was a pretty rough meeting for me to sit through. I could have left, but I decided I needed to be there and let myself be sad. That may sound masochistic, but sometimes there is profound inner-reflection and focus during really sad moments. And I need them when they come. They are great teaching moments for myself.

Sunday was a good day. A great day actually. I felt so overwhelmed with how grateful I am for my life. That probably sounds strange, considering the last few months. But I have a lot. I have so many wonderful, compassionate friends. An amazing family. A near-perfect husband. And three beautiful children. One who already has achieved the highest glory there is. I just felt so grateful and blessed.
Then it seemed like a steady decline over the past two days until I reached tonight.

I know rock bottom, that was the first days after Jane died. This isn't rock bottom, but it isn't pretty either.

I haven't been able to pinpoint what it is that has been making me feel so sad and anxious. Then my sweet mom, who is a wonderful grandma, reminded me. Today would have been Jane's 18 month birthday. I had completely forgotten. No wonder its been a hard weekend. She should be saying her first words, walking, playing with her brothers and I should definitely not be having to relive images of seeing her lifeless body in the hospital.

Seriously. I don't even know what else to say. Who has to deal with that?! It is ludacris that I have seen my baby girls body with tubes and monitors and no life. It just plain ol' sucks.

I miss that princess' diva scream and perfect eyes.

Grief is such a rollercoaster. It is constant ups and downs. The highs are so overwhelmingly wonderful, but the lows are really low.

2 Nephi 2:11 "For it must needs be, that there is an opposition in all things. If not so..righteousness could not be brought to pass, neither wickedness, neither holiness nor misery, neither good not bad..."